The Boy Whose Skin Grows Too Fast

DEDE FASCIANO: Harlequin Ichthyosis is a severe skin disorder. It is a genetic disorder that’s inherited at birth. For Evan, it is the most severe form of Ichthyosis. Dede: Time to cozy snuggly? Evan: Yeah and put my sweater! Dede: You want to put your sweater on? JOE FASCIANO: It is a condition that affects his skin and it makes […]

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One In A Million Boy With CLOVES Syndrome

JENNY PADILLA: Our child does look different and he was born that way, and we never knew he was going to be able to do all the things that he can do, and he amazes us every day. EILEEN HENWOOD: Victor is like every other 3-year-old. He loves to play with his friends, have fun. It’s interesting to watch the […]

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